Sloanie is a Punk Rocker

Last month, Sloan got a new piece of equipment called a stander. It helps him get into a new position, and makes his bones strong. He loves getting in it whenever he can, and he is SO TALL!! He measures exactly 5' tall, and when you add in the few inches the stander sits above the ground and three inches of hair, he is a GIANT! Sloan's very favorite thing to do while in the stander is to listen and dance to Punk Rock music! (I am so proud.) He is sating his appetite with The Sex Pistols, The Ramones, and all the classics we can dig up. OY!

Comments

Post a Comment

Popular posts from this blog

Talent Show 2010

Image
Sloan participated in the Reality Ministries 2010 Talent Show along with many of his friends from TNL. It was so amazing and fun to watch everyone share their talents. Sloan had been preparing his act for several weeks before the show. He knew he wanted to play his piano, then about 4 days before the talent show, I overheard Noah and Sloan singing together. They were singing Let It Be by the Beatles. Sloan has been practicing that song with his Voices Together group, and I had heard him sing it before, but not like he was singing with Noah. I asked him if they would like to do that song for the talent show as well as the piano, and then the serious practice began. The big night came, and Sloan was slated to go on in the middle of all the performances. It was a packed house, with people standing in the back. Cameron brought out his crazy Don Seacrestki (Related to Ryan Seacrest???) character again, and worked the crowd like no one else can. To see and hear Sloan and Noah performing for
Read more

Amazing Night!

Amazing! That is the only way I can think to describe the night we had seeing the Chris Hendricks Band in Raleigh this evening at Falls River Town Center. The band never disappoints with their music, and Sloan's CHB Street Team efforts paid off, with an entourage of 12 friends and family members in attendance. Sloan was very happy and proud to share the experience with everyone! Sloan was excited all day leading up to the show, and danced and sang during every single song. Then the main event for him happened--- Chris called Sloan up to sing Let It Be ! Chris, Aaron and Mike were so helpful these past few weeks getting this together, and very gracious and generous to share that experience with Sloan. Thank you so much guys! You are truly the best! And thanks to Noah for always being Sloan's music assistant; nurturing, practicing, and encouraging his musical interests and talents. In Chris' video and interviews, he talks very openly about his Cerebral Palsy. When we were sen
Read more

Merry Christmas!

Christmas came early for Sloan. The wonderful students at Duke finalized his guitar/piano stand, and to break it in, and to thank them for all their hard work, we had a Christmas Jam to celebrate! We shared a bunch of good food and good music with great friends! It is hard to even know where to start describing to folks who weren't here how amazing the party was for Sloan. There was a major jam session led by Sloan, Christmas carols, sing-alongs, ice cream cake!, and a very special surprise gift of three songs from Chris and Aaron of the Chris Hendricks band. Above is a highlight video of the evening, and here is a link to the many, many photos taken to document the fun. A very special Thanks to everyone who came and shared the evening with us, and a very big thanks to Rachel, Kristine, Brendan and Al from the Duke Biomedical Engineering class who made it possible for Sloan to create his music with everyone. A+ guys!Every friend in attendance came bearing their gifts of love, frien
Read more